Cure HHT
Research Network

A collaborative, patient-led research network.

Cure HHT is excited to launch the Cure HHT Research Network, an HHT patient-led research network that encourages the sharing of ideas among patients, scientists, and physicians.

Cure HHT is 1 of 30 organizations selected to participate in the Rare As One Network, which will provide Cure HHT with funding, tools, expansion support, and training to create a larger, more integrated HHT community.

©CureHHT. All rights reserved.


Founded by Dr. Priscilla Chan and Mark Zuckerberg in 2015, CZI is a new kind of philanthropy that’s leveraging technology to help solve some of the world’s toughest challenges — from eradicating disease, to improving education, to reforming the criminal justice system. CZI invited nonprofit, patient-led organizations focused on a rare disease to apply for a two-year funding opportunity to develop and launch collaborative research networks in partnership with clinicians and researchers.

CZI’s Rare As One Project seeks to lift up the work that patient communities are doing to accelerate research and drive progress against rare diseases, which affect approximately 400 million people worldwide. The program provides funding, tools, and capacity-building support and training. Cure HHT is one of 30 organizations selected to participate.

Our Mission

The Cure HHT Research Network aims to bring safe, effective treatments to patients more quickly by prioritizing research based on patient needs, broadening the HHT scientific community, and encouraging global collaboration.


Cure HHT
P.O. Box 329
Monkton, MD 21111

P: 410-357-9932
F: 410-472-5559

add us to your address book so our updates reach you

Stay Informed

Stay up to date with the latest news about the project. Your email will not be shared and will remain confidential.

Thank you

Thank you for your interest in the project. We will be in touch with updates soon.

Emails will come from so make sure to bookmark it.